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Spreading awareness for all rare genetic disorder's & undiagnosed children, so the unknown is not ignored, and knowledge becomes power!

Thank you for visiting our site! 
Join us on Evie-Anne's journey of bravery, courage and strength. We hope you enjoy browsing our website to share in the joy's and battle's of our special beautifully miracle girl. To find out what’s going on with Evie-Anne's progress, current health issue's, future battles, and to check out Evie-Anne's latest photos, please take a look at the "our story" and "picture gallery" section's of the site, and don't forget to sign the guest book and let us know what you think about our site in the Contact Us section!


Martina McBride
In my daughte's eye's.
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